Find all needed information about Trisomy Support. Below you can see links where you can find everything you want to know about Trisomy Support.
Trisomy 18, Trisomy 13 and Related Disorders. SOFT is a primary source of information about Trisomy, Care Management and Family Support
https://www.trisomy18.org/
Trisomy 18 is a life-threatening disorder that impacts about 1 out of every 2000 pregnancies in the U.S. Usually diagnosed in pregnancy, Trisomy 18 steals many dreams, but the Trisomy 18 Foundation helps parents create new dreams for their child and for their families.
https://trisomy.org/other-trisomy-18-or-13-supportgroups/
The mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate information to enable parents to make informed decisions on behalf of their children, and to be a mechanism for sharing between groups. ITA offers a series of booklets for families, which are offered in a variety of languages.
https://www.guidestar.org/profile/77-0600393
Trisomy 18 Foundation . . . Accelerating Research. Empowering Families. The mission of the Trisomy 18 Foundation is to improve the health outcomes of families who receive a Trisomy 18 diagnosis for their child through national leadership in accelerating progress in biomedical research, patient education, family support, and advocacy.
https://www.internationaltrisomyalliance.com/trisomy-support-groups.html
Trisomy Support Groups Hover over the links below for information, and click the link to visit the website, or email if there is no website. Please note, however, that we have no control over the nature, content or availability of those sites.
https://rarediseases.info.nih.gov/diseases/43/mosaic-trisomy-9
Jan 18, 2015 · Mosaic trisomy 9 is a chromosomal abnormality that can affect may parts of the body. In people affected by this condition, some of the body's cells have three copies of chromosome 9 (trisomy), while other cells have the usual two copies of this chromosome.The signs and symptoms vary but may include mild to severe intellectual disability, developmental delay, growth problems (both before and ...
https://www.trisomy18.org/resources/
If you or your family has recently learned of a Trisomy 18 diagnosis for a much-wanted infant or are facing new challenges, you have many, many questions. We have resources and answers to help you in your medical journey and to connect you with other families in our community who have faced these same challenges. Parents and Family »
https://rarediseases.info.nih.gov/diseases/5359/mosaic-trisomy-8
May 24, 2016 · Genetics Home Reference (GHR) contains information on Mosaic trisomy 8. This website is maintained by the National Library of Medicine. Unique is a source of information and support to families and individuals affected by rare chromosome disorders. Click on the link to view information about mosaic trisomy 8.
https://www.dailystrength.org/group/trisomy-18-edwards-syndrome
Trisomy 18 (Edwards Syndrome) Support Group. Trisomy 18 or Edwards Syndrome is a genetic disorder. Edwards Syndrome can result in characteristic physical abnormalities and significant developmental delays. For this reason a full-term Edwards syndrome baby may exhibit the breathing and feeding difficulties of a premature baby.
https://trisomynetwork.com/
Jan 19, 2019 · Support Organization for Trisomy 18, 13, and Related Chromosome Disorders SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
Need to find Trisomy Support information?
To find needed information please read the text beloow. If you need to know more you can click on the links to visit sites with more detailed data.
