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Groups are included if they provide support and information for families affected by trisomy 13 and trisomy 18. The inclusion of any links does not necessarily imply a recommendation or endorsement of the views expressed within them, and the views or opinions expressed by individuals do not necessarily reflect those of ITA.
SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980.
♥ The International Trisomy 18/13 Alliance ITA is a volunteer, not-for-profit organization focusing on trisomy 13 and trisomy 18, (also known as Patau and Edwards syndromes respectively). The mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate information to enable parents to make ...
A combined total of 860 surveys representing children and adults with rare incidence conditions such as trisomy 18, trisomy 13 and trisomy 9 mosaic were completed as of 10/31/16. 58.3% of children were at least 2 months of age or greater. A total of 1007 children and adults are enrolled in the project; many are SOFT members.
Rose’s mother Karen is Moderator of this YaHoo Group Trisomy 18 13 and related ... SPANISH Support site for Trisomy 18 & 13 Para Padres ENGLISH translation of Spanish support site for Trisomy 18 & 13 Para Padres (For Fathers) NORD - National Organization for Rare Disorders.
The Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a voluntary, non-profit network consisting of affected families and professionals who are involved in the care of individuals with trisomy 18, trisomy 13, and other related disorders (e.g., other chromosomal abnormalities involving the duplication of genetic material).
Trisomy 13 LIFE Support - Living with Patau Syndrome has 1,986 members. Group Questions must be answered before a new member is approved. *Check your...
Trisomy 13 Syndrome is a rare chromosomal disorder in which all or a portion of chromosome 13 appears three times (trisomy) rather than twice in cells of the body. In some affected individuals, only a percentage of cells may contain the extra 13th chromosome (mosaicism), whereas other cells contain the normal chromosomal pair.
59 rows · Mar 17, 2016 · Trisomy 13 is associated with severe intellectual disability and physical …
Hope for Trisomy 13 and 18 is a nonprofit, tax-exempt 501(c)(3) created in honor and memory of all living and nonliving children with Trisomy 13 and 18 and Related Conditions. The organization is now doing business as simply HOPE FOR TRISOMY to better represent its broader scope.
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