Find all needed information about Ehlers Danlos Support. Below you can see links where you can find everything you want to know about Ehlers Danlos Support.
https://www.ehlers-danlos.com/support-groups/
Support Groups and Charities We are about to start updating our support group network, and have been trying to reach groups through available contact information. Please watch your email or this page for information on being part of the new listings.
https://www.ehlers-danlos.org/
Ehlers-Danlos Support UK mentioned in parliamentary debate. Following Healthwatch Calderdale’s report into the experiences of adults with hypermobility syndromes published in July, the MP for Calder Valley, Craig Whittaker tabled a debate in parliament on Monday 7 October highlighting the findings of the report and calling for action.
https://www.ehlers-danlos.org/support/
Support is in the very fabric of what we do, so much so we even put it in our name. We run the only helpline in the UK specifically to help anybody touched by EDS and at a local level, our network of volunteers run local support groups and regional facebook pages to help families, friends and patients.. More regularly we are hearing stories from members about the difficulty they are having ...
https://www.ehlers-danlos.com/virtual-support/
Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls.
https://www.ehlers-danlos.com/support-groups-usa/
To add your EDS support group or charity, please complete the Support Group Listing Request form. To become an affiliate of the Society, please visit the Global Affiliation Program page.
https://www.dailystrength.org/group/ehlers-danlos-syndrome
Ehlers-Danlos Syndrome Support Group. Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening.
https://www.ehlers-danlos.com/affiliates-support-groups-and-charities/
We strive to increase awareness, improve care, and grow community support for those around the world living with Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related disorders. Hundreds of local support groups and charities are working hard to help those with EDS and HSD in their communities throughout the world.
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