Find all needed information about Marfan Support Nsw. Below you can see links where you can find everything you want to know about Marfan Support Nsw.
https://www.marfan.org/resources/patients
We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome …
Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.
http://www.geneticalliance.org.au/conditions_detail.php?Marfan-Syndrome-341
Another more recently described form of Marfan syndrome has been identified, where affected individuals primarily have heart and skeletal characteristics of Marfan syndrome, and do not have a faulty copy of the fibrillin-1 (FBN1) gene. This form of the condition is called Marfan syndrome type II.
http://www.marfanvic.org.au/
Marfan Syndrome Awareness. This video focuses on recognising the signs and symptoms of Marfan syndrome, including recognising / suspecting an aortic dissection in an emergency situation and best treatment practices.
https://www.facebook.com/MarfanIreland
Marfan Syndrome Support Ireland. 1.2K likes. Support group for patients, families and friends affected by Marfan Syndrome and Loeys-Dietz Syndrome in the North and South of Ireland.Followers: 1.3K
https://twitter.com/Marfan_Forum
Feb 19, 2016 · The latest Tweets from Marfan Support Forum (@Marfan_Forum). Marfan syndrome is an inherited disorder of the body's connective tissue that affects men and …Followers: 1.9K
https://marfansyndromeuk.wordpress.com/marfan-syndrome-fact-sheet/
Marfan Support and Information in NSW – Marfan site based in Australia. Run by Trudy. The Marfan Trust – set up in November 1988 to fund research into the cause and possible prevention of Marfan Syndrome and to assist with patient support. This is the Charity both Myself and the Marfan Forum support where We can
http://anzmarfans.boards.net/thread/5/sydney-marfan-specialist
Feb 20, 2014 · Ross, he is amazing and very passionate about what he does. You will find him very easy to talk to and for me, it was so nice to have someone understand and be interested in my condition and the physical and emotional ups and downs
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