Rett Syndrome Family Support

Find all needed information about Rett Syndrome Family Support. Below you can see links where you can find everything you want to know about Rett Syndrome Family Support.


For Families Rettsyndrome.org

    https://www.rettsyndrome.org/for-families/
    You Are Not Alone. Rettsyndrome.org is comprised of parents and friends of those diagnosed with Rett syndrome who have walked this journey. We are dedicated to providing families with the latest medical information, aggressively funding the most promising research for a cure, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome.

Homepage Rettsyndrome.org

    https://www.rettsyndrome.org/
    About Rett Syndrome. Rett syndrome is a rare non-inherited genetic postnatal neurological disorder that occurs primarily in girls and more rarely in boys. Rett syndrome leads to severe impairments, affecting nearly every aspect of the child’s life. Finding trusted information is the …

Rett Syndrome Family Support Groups - You're Not Alone

    https://www.girlpower2cure.org/get-help/family-support-rett-world/
    RETT UNIVERSITY. Rett University is an e-learning platform specifically designed for educators and therapists of Rett Syndrome students. Experienced professionals share their cutting-edge knowledge on how to support students with Rett Syndrome and push them to their highest levels of academic, physical and personal achievement.

Family Contact Network - Rett UK

    https://www.rettuk.org/how-we-can-support-you/parent-to-parent-network/
    Family Contact Network. Chatting to someone who knows exactly how you’re feeling and understands the daily challenges that Rett syndrome presents can really help. With our Family Contact Network supporters you’re only a phone call away from another parent who you can talk to.

Our Services - Rett UK

    https://www.rettuk.org/how-we-can-support-you/
    Our Services. Rett UK has been pr oviding support services for over 30 years. The founding families are still involved today and bring a valuable insight to the Rett …

Ontario Rett Syndrome Association Outreach Family Support

    https://www.rett.ca/for-families/outreach-committee/
    The Ontario Rett Syndrome Association realizes that a diagnosis of Rett syndrome can be devastating news for families. We have implemented a support program to aid our families through this transition. New members receive an initial email, then phone call to offer help in answering questions that a seasoned parent/caregiver can answer.

International Rett Syndrome Foundation - NORD (National ...

    https://rarediseases.org/organizations/international-rett-syndrome-foundation/
    The International Rett Syndrome Foundation is a non-profit, voluntary organization dedicated to three missions: research, advocacy and family support. Rett syndrome, a rare genetic neurological disorder that affects primarily females, is characterized by normal early development in the first year of life followed by a regression, which leads to ...

NWRSA – Northwest Rett Syndrome Association: Connection ...

    http://www.nwrettsyndrome.org/
    Support Northwest families dealing with Rett Syndrome on a daily basis. Click here to donate now! Become a member. Joining is free to all families affected by Rett Syndrome. Click here to register. Full Fundraising Request Letter. Dear Friends, Thank you for being part of our Northwest Rett Syndrome Association community. We are small in number ...



Need to find Rett Syndrome Family Support information?

To find needed information please read the text beloow. If you need to know more you can click on the links to visit sites with more detailed data.

Related Support Info