Find all needed information about Syndrome Support Network. Below you can see links where you can find everything you want to know about Syndrome Support Network.
https://gorlinsyndrome.org/
The Gorlin Syndrome Alliance serves people with Gorlin syndrome (Gorlin Goltz syndrome) and their families with disease information, support and research. Get updates on Gorlin syndrome research, managing symptoms and more
https://www.papolionetwork.org/
Our Mission is To Be in Service Providing Information to all Polio Survivors, Post-Polio Support Groups, Survivor's Families and their Caregivers. Check out "What's New" HERE Information about Post-Polio Syndrome is available HERE Our Latest Newsletter is Available in both Regular and Large Print Formats HERE Throughout our website, "Click" on any words highlighted in RED for additional ...
https://rarediseases.info.nih.gov/organizations/527
If you have problems viewing PDF files, download the latest version of Adobe Reader. For language access assistance, contact the NCATS Public Information Officer. Genetic and Rare Diseases Information Center (GARD) - PO Box 8126, Gaithersburg, MD 20898-8126 - Toll-free: 1-888-205-2311
Support - Information - Advocacy
https://dsfamilynetwork.org/
Welcome to the Down Syndrome Family Network Our mission is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome through research, information and …
http://www.autismsupportnetwork.com/
Join our free support community and connect with thousands of other families and individuals touched by ASD. Find out what’s working for others, coping strategies, and life guides from others living what you’re going through now.
https://rarediseases.org/organizations/rasmussens-syndrome-and-hemispherectomy-support-network/
Description The Rasmussen's Syndrome and Hemispherectomy Support Network is a national non-profit organization dedicated to providing information and support to individuals affected by Rasmussen's syndrome (Rasmussen's encephalitis) and hemispherectomy.
https://www.dsnetworkaz.org/
Our mission at DSNetwork is to educate, support and advocate for those in our community impacted by Down syndrome. DSNetwork achieves this goal through an open, supportive and collaborative network that connects individuals and families with needed resources and information.
http://www.goldenharsyndrome.org/
Welcome to the Goldenhar Syndrome Support Network, a program of AmeriFace! Join us in Las Vegas, July 24-27, 2011 - Download Details. Tuscany Suites & Casino - Just $35/night!* Pardon our dust! We're preparing to launch our new website, so check back real soon!
https://22qfamilyfoundation.org/living-22q/22q-support-groups-links
West Virginia 22q Support Network. Young Adults with 22q. ... Middle Tennessee Support22q. for individuals with 22q 11.2 deletion syndrome. Our mission is to connect families and individuals affected by 22q (Velo-Cardio-Facial syndrome, DiGeorge Syndrome) and related disorders. Our son Jonah was diagnosed with 22q 11.2 deletion syndrome when he ...
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