Find all needed information about Ehlers Danlos Syndrome Support. Below you can see links where you can find everything you want to know about Ehlers Danlos Syndrome Support.
https://www.ehlers-danlos.com/support-groups/
Support Groups and Charities We are about to start updating our support group network, and have been trying to reach groups through available contact information. Please watch your email or this page for information on being part of the new listings.
https://www.ehlers-danlos.org/
Ehlers-Danlos Support UK mentioned in parliamentary debate Following Healthwatch Calderdale’s report into the experiences of adults with hypermobility syndromes published in July, the MP for Calder Valley, Craig Whittaker tabled a debate in parliament on Monday 7 October highlighting the findings of the report and calling for action.
https://www.ehlers-danlos.com/affiliates-support-groups-and-charities/
The Ehlers-Danlos Society provides listings of support groups and charities, many of whom have joined the Society’s Global Affiliate Program. Please choose your geographic region below. We strive to increase awareness, improve care, and grow community support for those around the world living with Ehlers-Danlos syndromes (EDS), hypermobility ...
https://www.ehlers-danlos.org/support/support-groups/
Breaking down barriers. Breaking down Barriers is a project EDS UK have been working on since January 2017. Funded by the Sylvia Adams Trust, the project aims to extend genetic services to the south Asian community, who are known to have a higher prevalence of the Ehlers-Danlos Syndromes.
https://www.ehlers-danlos.org/what-is-eds/
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support…
https://www.ehlers-danlos.com/
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.
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